This section is intended for patients prescribed ADCETRIS. If you are a member of the public click here. If you are a UK healthcare professional click here.

Practical Advice and SUPPORT FOR PATIENTS RECEIVING ADCETRIS(brentuximab vedotin)

The treatment process can be overwhelming, especially when you're starting a new treatment. You might feel like you're being flooded with information.

Takeda oncology has developed some resources to help you organise the information you receive and keep track of any questions or concerns that you may have and/or any side effects you may experience.

patient guide

ADCETRIS - Your treatment booklet

This booklet has been developed to provide information for patients who have been prescribed ADCETRIS.

Download

Adcetris Nurse PN

Peripheral Neuropathy Leaflet

This leaflet has been developed to help you to understand the potential signs and symptoms of peripheral neuropathy which you may experience during your anticancer treatment.

Download

management tracker

Peripheral Neuropathy Tracker

This tracker has been developed to help you record any symptoms and feelings of neuropathy you may experience during your anticancer treatment. This may be helpful when discussing your treatment with your doctor and healthcare team.

Download

Conversations with your healthcare team

Prepare your questions

Whenever you think of a question, write it down. Look back at your questions before your appointment, and put them in order with the most important question first, in case time with your doctor or nurse is limited.

Don't hesitate to get in contact

Ask your healthcare team for the best way to get in touch and note down any contact numbers or email addresses they give you. If something is bothering you, don't wait for your next scheduled appointment to talk to your doctor or nurse, particularly if you are experiencing new or worsening symptoms or if you are having side effects.

Make sure you understand

Don't be afraid to ask for clarification if you don't understand the answers to your questions. Sometimes having something explained in a different way such as a video, drawing or in a leaflet can help. A vital part of your treatment is that you are kept informed and involved and your healthcare team will be happy to help.

Work in partnership

The more active you can be in managing your own treatment the more you'll feel in control. Ensure you respond to appointments, lab results, or referrals that you receive, and keep copies of results somewhere where you can easily access them. Regular contact with your healthcare team will help create the best partnership possible, there is no such thing as too much communication!

Help and support from charities

These charities can give you information, practical advice and support about living with Hodgkin lymphoma (HL), systemic anaplastic large cell lymphoma (sALCL) or cutaneous T-cell lymphoma (CTCL):

Lymphoma Action

Lymphoma Action

0808 808 5555

Bloodwise

Bloodwise

0808 2080 888

Leukaemia Care

Leukaemia Care

0808 801 0444

ADCETRIS (brentuximab vedotin) is subject to additional monitoring. This will allow quick identification of new safety information.
You can help by reporting any side effects you may get. If you get any side effects whilst taking ADCETRIS, talk to your doctor, pharmacist or nurse.
This includes any possible side effects not listed on this website or in the patient information leaflet. You can also report side effects directly via the Yellow Card Scheme at https://yellowcard.mhra.gov.uk/. By reporting side effects you can help provide more information on the safety of this medicine.